Thursday, June 28, 2018

Dr. Reed Tuckson's Dramatic Presentation on Disparities in Genomics at National Academy of Medicine

Wednesday, June 27, 2018, the National Academy of Medicine held a workshop on disparities in access to genomic medicine.    The conference webpage is here, and the NAM will produce a circa 100-page meeting report in a few months.   The agenda for the workshop is here.  I've clipped a brief meeting summary at the bottom of this post.

The closing keynote was provided by Dr. Reed Tuckson, who has held a wide range of distinguished roles (see here).   Among many, these roles have included President of the Charles R. Drew University of Medicine, Senior Vice President for Professional Standards at AMA; Executive Vice President at UnitedHealth Group.  He is currently the head of Tuckson Health Connections.

From the webpage, I urge you to listen to Tuckson's powerful closing address, which is found at about 8h19m to 8hr40m (here).  I've also posted informal/unofficial notes of the speech here

One topic is use of ancestry DNA information in arrests for crime cases; this is important if a racial group has deep distrust of police sources of evidence in the first place; see NYT here.


NAS Meeting Announcement:

On June 27, 2018, the Roundtable on Genomics and Precision Health will host a public workshop to examine the gaps in knowledge related to access to genomic medicine and discuss health care disparities and possible approaches to overcoming differential use of genomic medicine across populations. Workshop topics may include research on access to genetics and genomics services in medically underserved areas, model programs of care for diverse patient populations, and current challenges and possible best practices for alleviating health care disparities as they relate to genomics-based approaches. The workshop will convene diverse stakeholders, which may include community/public health researchers, clinicians, users of health care systems, payers, bioethicists, and policy makers to present their perspectives and participate in workshop discussions.

For an article on Integen's approach to border genotyping and security concerns, CNBC here.